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    Inspiring hope and enabling Heart Heroes to reach their potential.

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    Heart Heroes

    Below are just a handful of our wonderful and inspirational Heart Heroes, please click on the boxes below to learn more about each of them. 

    We would love to share more stories with our supporters, if you would like your child to feature on this page please email: info@chuf.org.uk

    Kaylee Ann Davidson-Olley

    Kaylee became the first surviving baby in the UK to have a Heart Transplant in 1987 at The Freeman Hospital at only months old. 30 years on she is the longest surviving baby in the UK to receive a heart transplant and second in the world.

    Chanel Murrish

    Chanel is now 6 years old and is the oldest ever living person born in the UK with a condition called Hypoplastic Left Heart Syndrome with an Intact Atrial Septum.

    Chloe Beaney

    Chloe was first diagnosed with dilated cardiomyopathy at the age of 12, presumed to have been caused by chemotherapy she had aged 2.

    Chloe Brown

    Chloe was just 6 months old when she went into heart failure after a virus attacked her heart.

    Elodie Gray

    Elodie was diagnosed with Dilated Cardiomyopathy at 3 Months old. She was placed in an induced coma for 3 Months at her local hospital in Bristol before being air lifted to Freeman Hospital in May 2014.

    Lily Mooney

    Lily was born with a chamber missing in her heart, and would need a series of heart operations before the age of 3 years old. As soon as she was born in 2006 she was taken straight to the heart unit at the Freeman.

    Linzi Saunders

    At 2 year's old, Linzi suffered from leukaemia and needed a bone marrow transplant. Thanks to her older brother James, she was able to make a full recovery after receiving his bone marrow donation, but by the age of 8 she was diagnosed with Dilated Cardiomyopathy and needed a heart transplant.

    Louisa McGregor-Smith

    Louisa received a heart transplant aged just 5 months old on 23rd December 2007, she previously suffered 2 strokes in November 2007 whilst awaiting a transplant.

    Luna Petrucci

    Luna was born with 2 congenital heart defects in separate chambers of her tiny heart and underwent open heart surgery 5 days before her 2nd birthday.

    Martha Andersen

    Martha received a Heart transplant in March 2007 aged just 16 months old.
    Following various complications with her lungs post-transplant she finally came home attached to a ventilator in August 2007.

    Sophia Mulvaney

    Sophia was born in December 2013 following a normal uncomplicated pregnancy but by the next day it was apparent that she was unwell.

    Harry Kennedy

    Harry is 10 years old and was diagnosed with congenital heart disease at 5 weeks old.

    Ava Jones

    Ava was a very fit and happy girl playing football and doing gymnastics until mid-October 2016 when she felt unwell and complained of a sore tummy. Her parents took her to her GP who referred her to The RVI.

    Zain Chohdry

    Zain was born in February 2014 with a number of congenital heart defects. Since then he has had 2 major open heart surgeries and several other cardiac procedures.

    Daniel Stephenson

    Daniel was born in 2008 and diagnosed with Truncus Arteriosus at just 10 days old, undergoing his first surgery at 7 weeks old.

    Jensen Forbes

    Jensen was born in December 2017 with Double Outlet Right Ventricle (DORV) and had his first heart operation at just 6 months old.

    George Hall

    George was born in 2012 with Congenitally Corrected Transposition of The Great Arteries (CCTGA) and underwent his first operation at just six days old.

    Thomas Wylie

    Thomas was born in 2007 with a large hole in his heart which was later repaired at Freeman Hospital at just 10 months old.

    Alaysia Nee

    When Alaysia was born in 2012 she was immediately taken to the Special Care Baby Unit then by ambulance to The Freeman Hospital. At just a few days old her family were told Alaysia had suffered a heart attack at birth which damaged the left side of her heart.

    Stephen Philpot

    Stephen Philpot underwent his first open heart surgery at 3 years old in 1975. Click here to read his story, in his words...

    Jess Danskin

    Jess was born in 2001 with Tetralogy of Fallot, undergoing her first major operation at just 2 years old in 2003.

    Seb Hollingsworth

    Seb was born in 2009, 15 hours after birth he was diagnosed with a Congenital Heart Defect (CHD) called Tetralogy of Fallot.

    Logan Samuel Tate

    Logan was born in 2018 undergoing his first surgery at just 5 months old at Freeman Hospital.

    Children's Heart Unit Fund - CHUF

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    Burdon Terrace, Jesmond. NE2 3AE.

    CHUF is a registered charity in England and Wales No 1160831 © 2020.

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