About Get Involved Donate What we do News Events Contact Us

Being part of the CHUF family helps people to achieve their dreams.

Making lives better.

Heart Heroes

Below are just a handful of our wonderful and inspirational Heart Heroes, please click on the boxes below to learn more about each of them. 

We would love to share more stories with our supporters, if you would like your child to feature on this page please email: info@chuf.org.uk

Kaylee Ann Davidson-Olley

Kaylee became the first surviving baby in the UK to have a Heart Transplant in 1987 at The Freeman Hospital at only months old. 30 years on she is the longest surviving baby in the UK to receive a heart transplant and second in the world.

Chanel Murrish

Chanel is 3 years old and is the oldest ever living person born in the UK with a condition called Hypoplastic Left Heart Syndrome with an Intact Atrial Septum.

Chloe Beaney

Chloe was first diagnosed with dilated cardiomyopathy at the age of 12, presumed to have been caused by chemotherapy she had aged 2.

Chloe Brown

Chloe was just 6 months old when she went into heart failure after a virus attacked her heart.

Elodie Gray

Elodie was diagnosed with Dilated Cardiomyopathy at 3 Months old. She was placed in an induced coma for 3 Months at her local hospital in Bristol before being air lifted to Freeman Hospital in May 2014.

Lily Mooney

Lily was born with a chamber missing in her heart, and would need a series of heart operations before the age of 3 years old. As soon as she was born in 2006 she was taken straight to the heart unit at the Freeman.

Linzi Saunders

At 2 year's old, Linzi suffered from leukaemia and needed a bone marrow transplant. Thanks to her older brother James, she was able to make a full recovery after receiving his bone marrow donation, but by the age of 8 she was diagnosed with Dilated Cardiomyopathy and needed a heart transplant.

Louisa McGregor-Smith

Louisa received a heart transplant aged just 5 months old on 23rd December 2007, she previously suffered 2 strokes in November 2007 whilst awaiting a transplant.

Luna Petrucci

Luna was born with 2 congenital heart defects in separate chambers of her tiny heart and underwent open heart surgery 5 days before her 2nd birthday.

Martha Andersen

Martha received a Heart transplant in March 2007 aged just 16 months old.
Following various complications with her lungs post-transplant she finally came home attached to a ventilator in August 2007.

Sophia Mulvaney

Sophia was born in December 2013 following a normal uncomplicated pregnancy but by the next day it was apparent that she was unwell.

Harry Kennedy

Harry is 10 years old and was diagnosed with congenital heart disease at 5 weeks old.

Ava Jones

Ava was a very fit and happy girl playing football and doing gymnastics until mid-October 2016 when she felt unwell and complained of a sore tummy. Her parents took her to her GP who referred her to The RVI.

Zain Chohdry

Zain was born in February 2014 with a number of congenital heart defects. Since then he has had 2 major open heart surgeries and several other cardiac procedures.

Daniel Stephenson

Daniel was born in 2008 and diagnosed with Truncus Arteriosus at just 10 days old, undergoing his first surgery at 7 weeks old.

Jensen Forbes

Jensen was born in December 2017 with Double Outlet Right Ventricle (DORV) and had his first heart operation at just 6 months old.

George Hall

George was born in 2012 with Congenitally Corrected Transposition of The Great Arteries (CCTGA) and underwent his first operation at just six days old.

Thomas Wylie

Thomas was born in 2007 with a large hole in his heart which was later repaired at Freeman Hospital at just 10 months old.

Alaysia Nee

When Alaysia was born in 2012 she was immediately taken to the Special Care Baby Unit then by ambulance to The Freeman Hospital. At just a few days old her family were told Alaysia had suffered a heart attack at birth which damaged the left side of her heart.

Stephen Philpot

Stephen Philpot underwent his first open heart surgery at 3 years old in 1975. Click here to read his story, in his words...

Jess Danskin

Jess was born in 2001 with Tetralogy of Fallot, undergoing her first major operation at just 2 years old in 2003.

Children's Heart Unit Fund - CHUF

Nelson House, Fleming Business Centre,
Burdon Terrace, Jesmond. NE2 3AE.

CHUF is a registered charity in England and Wales No 1160831 © 2019.

Connect with us

We will keep your information to send you our e-newsletter. We take your privacy seriously and will only use your details to provide the information and services you have requested from us. Click here to view our privacy policy. Should you wish at any time to have your details removed from our contact list please email info@chuf.org.uk.