A parent, Anne Scott, set up the Lesley Anne Scott Memorial Fund charity after the death of her daughter Lesley Ann, who was born with a serious heart problem.
Anne Scott retired as a Trustee in 1983 and it was her wish that the charity should be renamed the Childrens’ Heart Unit Fund – CHUF. This was an unincorporated charity (Charity Commission Number 512224). In 2015 the charity was incorporated (Charity Commission Number 1160831) and the name changed slightly to the Children’s Heart Unit Fund.
CHUF’s mission is to make life better for children and young people who are born with or develop heart conditions by providing lifelong support to them and their families. This is achieved by supporting the children and families who receive treatment by the Children’s Heart Unit staff based at Freeman Hospital and raising vital funds for large and small pieces of equipment, facilities, aftercare, salaries and research. CHUF’s charitable activities however go far beyond that of providing medical equipment and personnel. Very much linked to its vision statement, the Charity provides holistic care to the children by providing services and facilities that allow heart children to develop their skills and mature as any healthy child normally would. Two recent projects that demonstrate some of CHUF’s charitable activities include a home from home for parents and families called Scott House (worth £1.65 million), named after the Scott family who founded CHUF, and extensive play facilities (worth £300,000).
CHUF’s mission is achieved by supporting the Children’s Heart Unit at Freeman Hospital and their patients by raising vital funds for large and small pieces of equipment, facilities, aftercare, salaries and research. Each year over 300 children are admitted to the Children’s Heart Unit and over 1000 children return each year for outpatient appointments, families from all over the UK receive treatment at the Freeman Hospital. It is one of only two children’s heart transplant units and is the only unit capable of providing all the services that might be necessary from diagnosis to closing holes in the heart or heart transplantation – regardless of whether it is an unborn baby, a child or an adult who was born with heart disease.
In 2016 CHUF extended its reach to the 6 District General hospitals in the Northern region.
CHUF’s vision is that being a part of the CHUF ‘family’ helps people achieve their dreams. This means that not only do the children and families benefit from CHUF’s work but supporters enjoy the camaraderie and challenge of raising funds and are able to view the end result by visiting the Unit and seeing what they have achieved. For CHUF’s Patrons, Trustees and Staff this vision is equally true as they use their time and skills knowing the benefits they bring to others.
The objects of the CIO are:
To promote the Physical and Mental Health of patients in the United Kingdom and their families suffering from the following conditions:
• Congenital Heart Disease
• Heart disease acquired during childhood
• Pulmonary Hypertension acquired during childhood
• Solid Organ thoracic transplantation acquired during childhood
• To advance the education of the public of the above conditions and particularly but not exclusively by the support of research and the dissemination of the results thereof
CHUF’s aim is to provide top-up support over and above the current NHS funding and to assist the children and their families from the moment they need the specialist care. Our Trustees and fundraising team work closely with medical staff and families to ensure that CHUF’s support is targeted to where it is most needed. CHUF has bought vital equipment (for example heart scanners) and funds the salaries of play specialists and clown doctors to keep the children occupied and entertained whilst on the wards.
The CHUF fundraising team provides practical help, working in partnership with many individual and corporate supporters, to maximise fundraising at their events which include family days out, cycle, swimming and running challenges. In addition, CHUF has its own organised events (golf day, children’s Christmas party, and Children’s Toddle) which not only raise funds but allows families to come together and enjoy themselves.
Children's Heart Unit Fund - CHUF
Nelson House, Fleming Business Centre,
Burdon Terrace, Jesmond. NE2 3AE.
CHUF is a registered charity in England and Wales No 1160831 © 2018.